Tuesday, September 1, 2009

Life and LOVE, fitting them together...






Last week went by too FAST as they all do, and left me wondering how on earth me and the boys are gonna do the day to day without Mike around all day. We had five appointments this past week, all which were good reports but put a huge strain on Rowan and my relationship. He is having a hard time adjusting to all the changes that come with a new baby and one that requires so much of his Momma. We are experiencing multiple emotional meltdowns and covet your prayers, I find myself grasping for some Wisdom during all these outbursts and wonder how to meet his needs and still "do" all there is to "do".

Mike's parents were in town and they were great to be with and so helpful. Mike and I got much needed time together and attempted to gear up for this last week before he returns on Tuesday the 8th. Deep Breath, I do not know how it will all pan out, but I know the Grace of God covers me every moment of every day. That is Amazing!!!!

Phoenix's appointments went well, the biggest one was with the plastic surgeoun and much to my joy, we no longer have to bandage his back, fully closed and healed over. He still can not be on his back because of the risk of the bone breaking down the skin and coming through, which will always be a risk that we will have to monitor. We are working with our awesome Physical Therapist to figure out the right pillows and donuts to support him. Our boppy is working to prop him out without putting pressure on it for now. His feet are responding well to Physical therapy, I only have to tape and splint his right foot at night and his left (his club foot) is slowly progressing. And his shunt looks good, he'll have a head ultrasound in 3 weeks to confirm all the excess fluid is still draining correctly and their is no infection. He is slowly becoming a better sleeper, but I am amazed with how much he faces everyday and how well he does it, such a sweet and strong disposition.

This past week left me feeling overwhelmed and grasping for control by planning. That works for
people, but it always seems to be the unreachable for me, causing more stress in my heart and mind. God knows me sooo well and amidst all this I kept being reminded in my heart to take it one day at time and sometimes, one moment at a time. On sunday we were reminded by our Pastor, that life's one priority is LOVE and if we are living in love. Loving God first is our number one priority and everyone and everything else will be an overflow of that love. It seems too easy but it is sooo easy to get caught up in so many other "priorities" which only cause me stress. So taking a step back and focusing on what is important in this life one day at a time, LOVE.


Thank you for all your prayers, love and encouragement. We feel it everyday and thrive because of it.

2 comments:

  1. Whenever I see his pictures I can not believe everything he has been through and will go through! He is a strong lil man! Thank you for the update!xoxoxoxo

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  2. Dear Megan, so good to hear about little Phoenix, it takes me back to the first days and weeks after Greg was born, although we didn't have the massive medical stuff to deal with. You are doing an amazing job!! Be encouraged, you are NOT on your own! I think of what a privelege it was to pray for you all when I came over to stay with John and Kim. Take all the details to Father God, He understands all your anxieties and worries. One moment at a time, that was so good to read in your blog. When Greg throws his arms around me and hugs me tight even now he is 21, it makes all the hard and trying times melt away. Keep trusting God, he will NEVER let you down. Love Janette (Taunton, England)

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