Monday, September 14, 2009

Triumphant








































Since last time, we had an intense couple of weeks. 5 appointments 2 weeks ago and 5 new specialists added to our life. I was tightly wond that week between the mess of our house, appointments, Rowan's melt down's and the anticipation/fear and many emotions with Mike returning to school.These times are revealing , about how and what I turn to in stress filled times. I wish that it was God more and outward controls less, but we are always learning and growing aren't we??? Needlesss to say come to the end of the weekend, our house was in order, Rowan was/ is more adjusted, he staerted to request to hold his baby brother, appointments were full of purpose and I was beginning to feel encouraged and ready for the week ahead. Thank God for Labor day =)

Phoenix had his first Dr. appointment at the military hospital, since we've been using the hospital that he was transferred to after birth. OVERWHELMING, but super helpful and efficient use of three and a half hours. Basically we met with a head Dr. who overlooks all his care and all his needs and he connects us with the right specialists and gets the appointments set up. So in addition to our Neurosurgeoun, Plastic surgeoun, Occupational therapist and physical therapists, is a neonatologist (oversees hois development beyond a peditrician's care, looking for all the problems related to Phoenix's diagnosis and the fact that he was a preemie), Opthamologist ( children with Mylemogincele tend to have issues with their eyes), Genecist (which we already saw and cleared him of any genetic/ chromosomal issues, thank God!!!), Peditrician, Urologist (they are re-evaluating Phoenix beginning to be catheridized, he has developed a kidney infection, which is a sign of him needing help draining his bladder sooner than his body is naturally)and a pediatric orthopedic ( to over see his progression of his feet and hips.

Phoenix encourages me daily at these appointments, he is so content and flexible. Making it so much easier and peace filled for me. We also had an ultra sound on his kidneys and hips two weeks ago, which is how they found out about the kidney infection. No news on whether his hips are still bilaterally dislocated still or not, the orthopedic doctor will go over that with me.

This past week was surprisingly great, it was the first week of me being a full time Momma without the stress of Mike being gone (boot camp) and me being pregnant. Let me say I LOVE being a Momma. It has been FULL of the Grace of God, I know that. And I am amazed at the fruti of all the prayers invested in our family. I have been able to enjoy the boys and feel on top of the house, which is a miracle for me, seriously. Pregnancy took a toll on me being the best me and once again I am left soooooo thankful for Grace and God's timing being perfect. I feared this past week and realized that we often fear the new seasons of life, but God is never too eartly or late when he releases a fresh ability to walk that new season out Triumphantly. I feel so triumphant and I love it. The challenges that I am facing on a daily basis become more a part of my life and less a stressful mountain to climb.

Rowan and I played in the rain, three days in a row and he loves it, so do I. Also I found an Elmo doll at a rummage sale and that is his new best friend, he treats him like Phoenix, laying him doen and covering him up as we do with phoenix and feeding him a bottle and snuggling with him, it's so endearing. He is a joy. These are the pictures I included.

In the moments this week that have felt like i just can't do it, I step back and ask for help. Help always comes, whether it is just a change in my selfish thinking or a readjustment of my heart, to remembering that Mothering and taking care of a home is a gift. Challenging as it is, I can still find joy and triump in every day if I chose to. My fondest memories of childhood were just being at home with my brothers and My mom being there, playing with us and overseeing life with us. Just the simple day to day that I can get so bogged down by, relationship is always the priority, not busyness. I want my kids to feel that way when they look back on their childhoods.

Love to you all and thank you for journeying with us in love, prayers and encouragement. It is an immeasurable gift to us.

If you are interested in coming to the benefit for Phoenix or would like to donate, here is the link with all the information. We will be there, which we are sooo excited about.

http://fightingforphoenix.giving.officelive.com/
















9 comments:

  1. Oh, Megan. . . I am deeply moved. The activity of God is so apparent in your story. The faith, hope, joy and peace you express amidst affliction electrifies my spirit with revelation of the power and purpose of God in hardship! I am confident many will be ushered into a deeper awareness of the Divine through you and your precious family! My heart is with you. . .

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  2. Meggers, praise God that things are becoming more routine for you instead of merely stresses. This happened for us in our care of Anya too; funny that so many doctor appointments, specialists, and medical care can become somewhat routine!

    However I know that such things can still be very tiring and emotionally draining at times, and allow that for yourself. Remember that Phoenix (and Rowan at times) require more care because of the situation so don't compare yourself with other moms and what they are able to accomplish. Just do your best and rest in God's grace!

    Love you friend!

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  3. Oh and I love the pictures! What are you holding in your hand in that picture with Rowan?

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  4. Oh never mind, when I looked at a bigger version of the picture, I realized you were holding Phoenix. So cute!

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  5. Oh Megan! You and your sweet family encourage and inspire me. Phoenix and Rowan are absolutley adorable!!

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  6. LOVE the pictures of Rowan and Phoenix. You are so encouraging with your writing and your life. Thank you for reminding ME to step back and reevaluate a situation of craziness.

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  7. Megan and Mike,

    The pictures of the boys together are absolutely adorable! They have such pretty blue eyes! It is such a blessing that you have God in your life and are getting through the day to day, one day at a time...and that you are able to do all that you do is such an inspiration. We look forward to seeing you at the benefit. We are always praying for you all.

    Love,

    Joe, Kim, Julie, Kaylee, and Sean

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  8. I love those pics!! Beautiful update. I am so glad that you are enjoying your time at home... sometimes it is so easy to get caught up and overwhelmed. I loved your description of your happiest childhood memories. It will encourage me tomorrow to think of it while I am doing everything for and with Anastasia! Love you.

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  9. Hey guys,
    you dont know me so much as you do Anna of course...but i know your are a dear friend to Anna and she loves you so much. I read you blogs and updates as anna sends them along..i am praying for you and your family. My 3 year old daughter also loves your pictures...she saw them today and said " mommy I love all da babies, day are soooooo cute!" You kiddos are very cute and wonderful! You are doing a great job! Many Blessings!

    Enid Jones

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