Wednesday, July 1, 2009
He is so beautiful. Doing well today, they put soft casts on his feet, to help shape them and begin working on helpoing with all the stiffness of his legs. He is still hooked up to oxygen and they are hoping to take him off of that in the next few days, as well as they are trying to see if he'll be able to maintain his body temp. They just received his special bed and it is not a warming bed, but it moves him automatically and will keep him from getting bed sores and stiffer than he already is. His hips are dislocated from the positioning in my belly and lack of muscle in his lower body, so the physical therapists are trying to best approach positioning him and how to handle all this. Our nurse today was awesome, she let us know that the NICU life, is full of ups and downs, that he may be soing well for a few days and then not so great, two steps forward one step back. I am praying that we'll only see forward, but one day at a time.

Tomorrow, we will be meeting with other doctors that we haven't met. Phoenix has a whole team of specialists that are working with him, it is Amazing the detail of which they are able to treat and care for his needs.

Our prayers today are for him to be able to maintain his own temperature and breath well on his own and that infection would not invade his body, that his wound would heal well and new skin would develop to begin the process of covering. That my body would heal quickly and that my pain would decrease, as it has been really hard. Tonight I would get sleep and feel refreshed, we have a FULL day tomorrow.

Love to you all.

1 comment:

  1. Oh Meagan, I just saw your post on facebook. I will pray for you, and your little one. May there be manysteps forward, and only tiny steps back! Yuo should contact me, I would love to make some tiny shoes or a special blanket. I know the NICU has specifications on size and such, but let me know. weepereas at yahoo

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